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You are here: BAILII >> Databases >> England and Wales High Court (Family Division) Decisions >> RY v Southend Borough Council [2015] EWHC 2509 (Fam) (22 May 2015) URL: http://www.bailii.org/ew/cases/EWHC/Fam/2015/2509.html Cite as: [2015] EWHC 2509 (Fam) |
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FAMILY DIVISION
B e f o r e :
(In Private)
____________________
RY | Applicant | |
- and - | ||
SOUTHEND BOROUGH COUNCIL | Respondent |
____________________
(a trading name of Opus 2 International Limited)
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____________________
MS. F. HEATON QC and MR. S. SPENCER appeared on behalf of the Respondent.
MS. J. WALKER appeared on behalf of the Guardian.
____________________
Crown Copyright ©
(Transcript prepared without the aid of documentation)
MR. JUSTICE HAYDEN:
"RY has considerable experience of being with and looking after children with disabilities. This experience has been accumulated over many years. She also has a clear perception that children with disabilities are children first and foremost and are entitled to the same opportunities as others to play, learn, develop and enjoy life. However, she is also aware of the increased vulnerability of disabled children who may find it hard to communicate or to understand and she has given thought to how her child could be assisted in understanding their circumstances and history most appropriately and in communicating their wishes".
"She has a realistic appreciation of the changes which adoption will bring and has made the point that there is very little in her life which cannot be altered to accommodate a placement. She is not in paid employment and could therefore be available for her child almost full-time. She is expecting parenthood to be challenging and has prepared for this to the best of her ability".
"RY's own health became a much more dominant factor as she moved from primary to secondary school. She was diagnosed in 2006 with Ehlers-Danlos Syndrome, a condition which typically develops during puberty as the body enters a rapid growth phase. As a younger child RY recalls that she was rather clumsy and not very well co-ordinated, but she had not had any problems with mobility as such. At the age of 12 she started to have pain in her joints but this was put down to 'growing pains'. The pain grew worse over time and affected her mobility. She struggled to keep up with her peers, especially as her school was situated on a very large campus and classrooms were often far apart. No cause was found for her difficulties. RY's mother thought her problems might be emotional as she was being bullied at school. She was referred for physiotherapy which caused her more pain. At the age of 15, RY refused any more physiotherapy as it was so painful.
At 16 she bought herself a walking stick. Life was difficult at this time. Although RY was in frequent and in severe pain no condition had been diagnosed and her parents thought her condition might be psychosomatic. RY told me that she had begun to wonder the same thing herself.
It was when she left home to go to the Royal Northern College of Music that RY realised how much her parents had been doing for her and how much she was struggling to cope with day-to-day tasks like washing and shopping. She asked for a wheelchair assessment in her first year. Because of her contact with her friend Katie and other young disabled people, RY had no reservations about using a wheelchair and saw it as a positive option for getting around more quickly and without pain and very preferable to walking laboriously with two sticks. When she first told her mother she had a wheelchair, Deborah thought RY was 'mad' as she still did not have a diagnosis".
"Normal life. So what does this mean for me now at 28 years of age? The really really obvious bit is that I use a wheelchair. Those wobbly joints, my hips, knees and ankles, are just too wobbly for walking on. They are so wobbly that the weight pressure does not get shared through the middle of the joint like it's meant to, so trying to stand up is also extremely painful.
I've had a power chair since 2006 and have been a power chair user full-time, my only way of getting around, since late 2007. Now I weigh around 80 kilograms and while my arms are pretty strong, before I had my power chair I was self-propelling a manual wheelchair, before that I was walking with crutches and heaving myself upstairs, they are not strong enough given that general wobbliness along with a shoulder damaged in a rather nasty fall in 2007 to support my body enough to transfer myself. Transferring means moving from one place to another, wheelchair to sofa to loo to bed, so I do my transfers using a hoist which lifts me by means of a fabric sling that I sit on. I have hoists fitted in my house.
I know the location of every public loo within a 15-mile radius. The Changing Places Campaign details these and I have an excellent relationship with a company who can deliver one for hire pretty much anywhere in the country within four hours' notice so that going on holiday is no problem. The hoist in my house is set up so that I can use it easily myself without any help even to hoist other people. A good hoist setup means that even a very big, heavy and totally physically dependent person can transfer safely without a care giver needing to apply any strength to the situation at all.
Using a power chair means that some practical things are unreasonably difficulty or energy inefficient for me. For example, changing the sheets on a bed, scrubbing the loo, hanging out washing or chopping a big mountain of vegetables for dinner. Luckily I have support from personal assistants so I can 'delegate' those jobs which leave me with a lot of time and energy which can all be dedicated to caring for a child. Consequently, I would actually be far more available to a child with a high level of support need than any other single parent would be.
All the direct hands-on tasks of physically caring for a child are relatively easy for me or at least no harder than they are for anyone else as far as I can tell. The things I need support with are peripheral, practical tasks which exist outside the parent-child relationship. Cooking is a good example. I'll look in the fridge, decide what I'd like to cook, ask my PA to chop the veg and any other really physical jobs and then take over with stirring tasting and seasoning. Or sometimes I'm just doing the deciding and none of the hands-on stuff. I call this cooking by proxy. I really like trying new things and making food from scratch. I am vegetarian but would happily cook meat and fish for a child who needed it or asked for it once they were old enough.
The EDS also affects a couple of other things. My swallow is a little bit out of whack which makes drinking enough to be well hydrated quite hard work. Because of this I have a back-up option, a little tube that goes straight into my stomach called a gastrostomy tube or a PEG tube. This really has no bearing at all on the rest of my life, it's just there. I use it when I need to and as a result I am always in as good a shape physically as I can possibly be. I also use my tube to take medication, not having to taste it is a bonus. Nobody would know my tube was there unless I told them.
Just as my swallow is that bit out of whack, so is the mechanism by which most people urinate. As a result of this I have got a super-pubic catheter that's another soft little tube which goes through a hole low down on my belly into my bladder. Again nobody knows it's there unless I tell them and it has no bearing at all on the rest of my life except for the very useful side effect of making me need to worry a lot less about where the nearest toilet with a hoist is. I don't tend to tell people that I've got a gastrostomy tube or a super-pubic catheter, there's no good reason for anyone except my GP to know and the district nurses who would give me back-up if I was having some sort of problem. They don't affect what I do in day-to-day life at all nor would they affect my parenting except possibly to give me slightly more capacity than most.
I was diagnosed with Asperger's syndrome as an unhappy home-sick 19-year old struggling to keep up with sorting myself out at college. The diagnosis stands, but under other circumstances I would never have been diagnosed as any difficulties relating to it are so mild as to be undetectable. People are usually very surprised when I tell them about this diagnosis, but again I genuinely have no reason to. I don't believe that it really affects my interactions with other people".
"With regard to its own failure to consider these records, the adoption agency is cognisant of the fact that although not signposted in the regulations, a review of RY's medical records is likely to have been beneficial during the adoption process".
"Where an adoption agency has referred a proposed placement to the adoption panel, the panel must consider the proposed placement and make a recommendation to the agency as to whether the child should be placed for adoption with that particular prospective adopter pursuant to regulation 32(1) of the Adoption Act Regulations 2005.
In considering what recommendation to make the panel, (1), must have regard to the statutory duties imposed on the agency; (2), must consider and take into account all information and reports ^ passage of it; (3), may request the agency to obtain any other relevant information which the Panel considers necessary; and (4), may obtain legal advice as it considers necessary in relation to the case. Thereafter, in coming to a decision about whether a child should be placed for adoption with a particular prospective adopter, the agency decision maker must take into account the recommendation of the adoption panel and have regard to the child's continuing welfare, pursuant to regulation 34(4) of the Adoption Act Regulations 2005".
"Agencies have a duty to satisfy themselves that prospective adopters have a reasonable expectation of continuing to enjoy good health. The medical adviser should explain and interpret health information from the prospective adopter, their GP, and consultants if relevant, to facilitate panel discussion. The opinion of the prospective adopter's GP and the agency's medical adviser about the health status of the prospective adopter needs to be given sufficient weight by adoption panels and agency decision-makers. Mild chronic conditions are unlikely to preclude people from adopting, provided that the condition does not place the child at risk through an inability to protect the child from commonplace hazards or limit them in providing children with a range of beneficial experiences and opportunities. More severe conditions must raise a question about the suitability of a prospective adopter, but each case will have to be considered on its own facts ..."
"The agency appreciates the strength of an argument that it failed to have sufficient regard to the matters required of it both by the regulations and the statutory guidance. In the context of that argument, the court understands the pressures on agencies quickly to match children with approved adopters as a result of government measures".
"It is a reality of the situation that adoption agencies are being judged and measured by government departments on the speed of time taken to match children, poor performance leads to penalties".
"This adoption agency recognises that these pressures may have resulted in proper scrutiny not being fully implemented in this case. I am offered reassurance that the agency recognises that a request to consider our wide medical records would have been beneficial to the matching process. I have been told that they intend to address this failing for the future by ensuring that the agency is more ready to be resistant to pressures and to identify at an early stage those cases which it considers to be exceptional where a 'longer matching process is required'."
"35 Return of child in other cases
(2) Where a child is placed for adoption by an adoption agency, and the agency –
(a) is of the opinion that the child should not remain with the prospective adopters, and
(b) gives notice to them of its opinion, the prospective adopters must, not later than the end of the period of seven days beginning with the giving of the notice, return the child to the agency.
(5) Where –
(a) an adoption agency gives notice under subsection (2) in respect of a child,
(b) before the notice was given, an application for an adoption order (including a Scottish or Northern Irish adoption order), special guardianship order or residence order, or for leave to apply for a special guardianship order or residence order, was made in respect of the child, and
(c) the application (and, in a case where leave is given on an application to apply for a special guardianship order or residence order, the application for the order) has not been disposed of, prospective adopters are not required by virtue of the notice to return the child to the agency unless the court so orders".
"1 Considerations applying to the exercise of powers
(1) This section applies whenever a court or adoption agency is coming to a decision relating to the adoption of a child.
(2) The paramount consideration of the court or adoption agency must be the child's welfare, throughout his life.
(3) The court or adoption agency must at all times bear in mind that, in general, any delay in coming to the decision is likely to prejudice the child's welfare.
(4) The court or adoption agency must have regard to the following matters (among others) –
(a) the child's ascertainable wishes and feelings regarding the decision (considered in the light of the child's age and understanding),
(b) the child's particular needs,
(c) the likely effect on the child (throughout his life) of having ceased to be a member of the original family and become an adopted person,
(d) the child's age, sex, background and any of the child's characteristics which the court or agency considers relevant,
(e) any harm (within the meaning of the Children Act 1989 (c.41)) which the child has suffered or is at risk of suffering,
(f) the relationship which the child has with relatives, and with any other person in relation to whom the court or agency considers the relationship to be relevant, including –
(i) the likelihood of any such relationship continuing and the value to the child of its doing so,
(ii) the ability and willingness of any of the child's relatives, or of any such person, to provide the child with a secure environment in which the child can develop, and otherwise to met the child's needs,
(iii) the wishes and feelings of any of the child's relatives, or of any such person, regarding the child.
(7) In this section, 'coming to a decision relating to the adoption of a child', in relation to a court, includes –
(a) coming to a decision in any proceedings where the orders that might be made by the court include an adoption order (or the revocation of such an order), a placement order (or the revocation of such an order) or an order under section 26 (or the revocation or variation of such an order),
(b) coming to a decision about granting leave in respect of any action (other than the initiation of proceedings in any court) which may be taken by an adoption agency or individual under this Act,
but does not include coming to a decision about granting leave in any other circumstances".
"25 Parental responsibility
(1) This section applies while –
(a) a child is placed for adoption under section 19 or an adoption agency is authorised to place a child for adoption under that section, or
(b) a placement order is in force in respect of a child.
(1) Parental responsibility for the child is given to the agency concerned.
(2) While the child is placed with prospective adopters, parental responsibility is given to them.
(3) The agency may determine that the parental responsibility of any parent or guardian, or of prospective adopters, is to be restricted to the extent specified in the determination".
"When the agency is considering placing a child for adoption with a particular prospective adopter, the agency should consider the extent to which the exercise of the prospective adopter's parental responsibility for the child should be restricted by the agency while the child is placed. It may well be appropriate for there to be a gradual 'shift of power' so that the prospective adopter comes to have a greater degree of autonomy as the placement progresses, and their confidence and parenting skills develop, bearing in mind that once the adoption order is made they alone will have parental responsibility".
"The proposed arrangements for exercise of parental responsibility will be set out in the adoption placement plan, giving the prospective adopter the opportunity to express their views about them prior to their agreement to the placement. The arrangements will be subject to review at each review under AAR 36, and any change to the arrangements must be recorded on the amended adoption plan. Any changes must also be notified to the child (if of sufficient age), the prospective adopter, and any other person the agency considers relevant. It will be helpful, for example, for the agency to notify the school or education authority of the arrangements in respect of the exercise of parental responsibility with regard to education".
1. Obstructive Behaviour
a. RY has refused nursing observations on SL on several occasions. Observations include the recording of parameters such as heart rate and blood pressure and are routine in the care of children in hospital.
b. On 20/10/14, RY refused to allow SL to have her medication via the gastrostomy.
c. RY was challenged about her obstructive behaviour (in particular refusing medication by gastrostomy) by her then lead consultant Dr Boon. He explained that RY did not have full parental responsibility and did not have the right to refuse medical treatment for SL. Following this, RY requested a change in consultant. She stated as her reason that Dr Boon had made her feel threatened. Nursing staff were present in that consultation and stated that Dr Boon did not behave in a way which could be interpreted as threatening.
The act of asking to change consultants after being challenged is concerning because RY is putting her own desire to control decisions about SL's care above SL's need for appropriate medical care. Dr Boon arranged for the Patient Advice and Liaison Service (PALS) to meet with RY to discuss her concerns and Faye Taylor (the ward manager) also had two further meetings with RY to allow her the opportunity to make a complaint and fully express the reasons for her request to change consultant. RY did not give any specific reasons for the requested change in these meetings.
d. RY has disputed dietetic feeding regimes despite dieticians and health care professionals taking time to explain why the recommended feed was considered most nutritionally appropriate for SL
e. On a previous admission to hospital, RY discharged SL against medical advice. She stated to healthcare staff during that admission that she had full parental responsibility. This was an incorrect claim and social workers were subsequently alerted and had to explain to RY that this was not the case and she did not have the right to discharge against medical advice.
f. Prior to a previous admission to RMCH, RY refused to allow SL to travel by ambulance despite advice by the attending paramedic.
g. Overall, it has been the experience of medical and nursing staff that RY is frequently obstructive around SL's care making managing SL and communicating with RY extremely challenging
2. Over reporting of medical symptoms and medical needs
a. RY has been witnessed suctioning SL with a frequency that far exceeds her need and to a degree which is likely to cause harm and distress. Children with neurodisability will sometimes struggle to swallow all their oral secretions. This can cause drooling and if severe can risk the saliva going down the windpipe causing respiratory problems. Being unwell, particularly with a respiratory illness, or being very distressed can increase children's oral secretions. It is not unusual for children with SL' s level of disability to require some oral suctioning particularly if unwell.
Suctioning consists of placing a suction catheter a short distance into the mouth to suck out secretions. RY has been taught by community staff to do this when needed at home. In hospital, RY has been witnessed suctioning SL very frequently (many dozens of times a day) She has also been seen to place the suction catheter deeply into the mouth and nose. Excessive suctioning can cause pain and distress to children. It can also stimulate excessive secretions making the situation worse. There is also the possibility that it can interfere with breathing by causing a spasm in the larynx (top of the windpipe) and resulting in low oxygen saturations.
On several occasions, RY has been spoken to by nursing and medical staff to explain that her suctioning technique was inappropriate and that she was suctioning too frequently. On each occasion, RY has refused to accept advice and has responded that suctioning is her job and she has been trained. Community staff have confirmed that they trained RY to suction superficially in the mouth, not in the nose and not to suction deeply, all of which has been observed.
b. RY has reported frequent episodes of low oxygen level in SL and has given oxygen herself several times. For a number of reasons, children with disability will often have brief periods of low oxygen levels. When reported in SL, she had a medical assessment and investigations and monitoring. Following that, it was explained by
c. Medical colleagues to RY that SL's episodes of desaturations were brief, self correcting and not harmful. In the case of episodes of desaturation, it would be appropriate for RY to alert nursing staff who would assess SL and her need for oxygen. It is inappropriate for non-trained parents or carers to give oxygen to a patient. Dr. Boon spoke with RY at the start of his period as lead Consultant to explain that she should not be giving oxygen as she was not qualified to do so. This advice has been repeated by the nursing staff on numerous occasions, but in spite of this RY continued to administer oxygen.
d. In repeated consultations, RY has expressed concerns that SL is not progressing and has numerous medical problems including desaturations, need for suctioning, abdominal pain and vomiting. RY has been preoccupied with the concerns to such an extent that communication with RY about progressing with SL's feed and discharge plans have been extremely challenging and this has led to an unnecessarily prolonged stay in hospital which is not in SL's best interests ..
In a consultation with myself and SL's dietician on Thursday23/10/14. RY said that she did not want SL to be fed with the feed suggested by the dietician because when she had had it last time, SL had screamed from 20 minutes after the feed had started until it was stopped. She stated that she struggled to get nursing staff to attend when SL was distressed. I suggested a plan that SL have a nurse present for the first hour after the feed was started and again for an hour every time the feed was to be increased to support RY and to assess SL's tolerance of the feed. RY responded that she did not want a nurse present during the feed and attempted several times to refuse the offer of nursing presence during feeds.
RY's inconsistency in describing a problem with the feed and with inadequate nursing staff support but attempting to refuse having nursing staff present is concerning behaviour. In my experience, parents who are worried about their child being in pain or distress are anxious for closer observation to more easily detect and treat their child's distress.
e. During SL's admission, there has been a discrepancy in SL's medical needs judged by nursing and medical staff, compared with RY perception of her needs. On occasions where nursing staff have been with SL for periods of up to 2 hours, SL has been well and not required any intervention. When SL has been in the unsupervised care of RY, RY has reported numerous problems and interventions required.
Since RY has been excluded from the ward. SL has remained well and has received all her feeds and medications by gastrostomy. She has had no abdominal distension or vomiting. Her suction needs have been greatly reduced.
3. Over-medicalised behaviour by RY including discussion of
inappropriate interventions
a. It has been my experience and that of medical colleagues that it has not been possible to have constructive conversations with RY about SL's medical management and discharge plans. RY has repeatedly asked about increased intervention such as a tracheostomy (a tube inserted through the neck into the windpipe to produce a safe airway in children with airway problems) and on another occasion a central line (a tube placed through the skin into a large vein in the chest) for the administration of parenteral nutrition (food directly into the bloodstream for children unable to be fed by the usual route). Neither of these interventions would be appropriate for SL' s current medical needs.
b. Ms RY has also asked about the prospect of SL going home even if she were not able to tolerate her feed. It was clarified with RY that SL needs her feed to live and so going home without being fed would effectively be palliative or end of life care. RY understood this but repeated the query despite a clear message that SL was not dying and that the medical plan is to build up her feeds and send her home in the near future. In my experience, parents and carers will usually find the topic of end of life care very distressing and it would be unusual for them to attempt to discuss an end of life plan when the child was not seriously unwell or expected to deteriorate or die. This is more unusual still considering that RY has not yet adopted SL and she remains a looked after child.
Summary
From discussions between health professionals who have been involved in SL's care during this admission. I believe that she has suffered harm through the following actions by RY:
1. Inappropriate interventions whilst on suctioning and oxygen administration. the ward i.e. unnecessary frequent
2. Delays in the administration of medications and a failure to establish regular feeding secondary to RY's obstructive and challenging behaviour around the use of SL's gastrostomy.
3. Over reporting of SL's medical condition which does not fit with the objective findings of the medical and nursing teams
4. Delay in the anticipated discharge date for SL, due to the above factors.
"Anyone else got a tongue biter other than tonic-clonic seizures? She had an absolutely horrific afternoon of SL biting her tongue hard over and over screaming in pain, choking on the blood and ultimately panicking. Really struggling with this one. I am frightened she is going to maim herself".
Cases of this kind generate real public concern and rightly so. In the past a judgment such as this would not have entered the public domain. It is hardly surprising therefore that public understanding of the Family Court process and confidence in it's system had begun to erode. The Practice Guidance of the 16th January 2014 was intended to and has achieved immediate and significant change in practice in relation to publication of judgments in the Family Courts and the Court of Protection. In April 2013 Sir James Munby P issued a statement, View From the President's Chambers: The Process of Reform, [2013] Fam Law 548 in which he identified transparency as one of three central strands of reform which the Family Justice System is currently undergoing. This is an ongoing process in which a balance between freedom of expression, protected by Article 10 ECHR and the rights of vulnerable children to privacy and security, protected by Article 8 is often a delicate one.
"24. The third observation I make is that the process that the President is currently engaged in is very much one which is organic and developing. It is not apt, in my view, for the Court of Appeal to intervene and to offer its own guidance, as we are invited to do by Mr Wilkinson, in the course of that process unless it is plain to this court that a judge in a particular case has fallen into an error of principle or is otherwise plainly wrong in the decision that has been given. I am therefore careful in the words that I use in this judgment to say nothing to enlarge upon or contradict the words that the President has carefully chosen to put into his guidance."
"There is express approval of the methodology in Campbell in which it was made clear that each Article propounds a fundamental right which there is a pressing social need to protect. Equally, each Article qualifies the right it propounds so far as it may be lawful, necessary, and proportionate to do so in order to accommodate the other. The exercise to be performed is one of parallel analysis in which the starting point is presumptive parity, in that neither Article has precedence over or trumps the other. The exercise of parallel analysis requires the court to examine the justification for interfering with each right and the issue of proportionality is to be considered in respect of each. It is not a mechanical exercise to be decided on the basis of rival generalities. An intense focus on the comparative importance of the specific rights being claimed in the individual cases is necessary before the ultimate balancing test in the terms of proportionality is carried out."
"…the observation of Lord Steyn that earlier case law on the inherent jurisdiction of the High Court may be relevant in regard to the balancing exercise to be carried out under the ECHR provisions, applies, because the injunction is sought and granted as part of the court's consideration of a question regarding the upbringing of the child concerned: see s.1 (1) of the 1989 Act. In such a case, the child's welfare, which of course includes respect for his or her privacy free from damaging publicity, is the court's paramount consideration see Re Z (A Minor) (Identification: Restrictions on Publication) [1997] Fam 1 per Ward LJ at 23C-E, 23H-24A, 28B-D, 29D-E and per Sir Thomas Bingham MR at 33B-D. Nonetheless, it does not exclude the necessity for the court to consider (a) the right of the child under Article 8 to privacy, both in relation to the proceedings and the confidentiality of his or her personal data, (b) the right of the parent under Article 10 to tell his or her story to the world and, (c) in the case of an application by media interests, their wish to publish or broadcast the story and/ or to comment on the issues involved."
"50. What human rights law has done is to identify private information as something worth protecting as an aspect of human autonomy and dignity. And this recognition has raised inescapably the question of why it should be worth protecting against the state but not against a private person. There may of course be justifications for the publication of private information by private persons which would not be available to the state - I have particularly in mind the position of the media, to which I shall return in a moment - but I can see no logical ground for saying that a person should have less protection against a private individual than he would have against the state for the publication of personal information for which there is no justification. Nor, it appears, have any of the other judges who have considered the matter.
51. The result of these developments has been a shift in the centre of gravity of the action for breach of confidence when it is used as a remedy for the unjustified publication of personal information. It recognises that the incremental changes to which I have referred do not merely extend the duties arising traditionally from a relationship of trust and confidence to a wider range of people. As Sedley LJ observed in a perceptive passage in his judgment in Douglas v Hello! Ltd http://www.bailii.org/ew/cases/EWCA/Civ/2000/353.html[2001] QB 967, 1001, the new approach takes a different view of the underlying value which the law protects. Instead of the cause of action being based upon the duty of good faith applicable to confidential personal information and trade secrets alike, it focuses upon the protection of human autonomy and dignity - the right to control the dissemination of information about one's private life and the right to the esteem and respect of other people."